There was a certain point during all of this that I will always remember…
A major turning point in my life happened in my early 20s. I was suddenly having abdominal pains and feeling sick to my stomach. And it kept happening more and more frequently. Doctors were no help. I was pushed through their revolving doors as fast as possible, while they brushed off my complaints. I was told it was just this or just that, which always conflicted with what other doctors had said. I didn’t know what to eat anymore. It always made me sick. Even sleeping was a hassle. Any sort of pressure near my abdomen was either uncomfortable or downright painful. It was a confusing time, to say the least. I stopped going to class at university. And I lost about 20 lbs.
At a culminating point of
frustration, my sister took me to the hospital in hopes of getting to
the bottom of this. By the end of a long wait and a few tests I was
referred to a specialist. It was at this specialist that I was
finally able to begin to make sense of things. More tests led him to
believe that this was 99% Crohn’s disease. From this information, I
was able to develop a plan. I began eating again on a very limited
diet, though the specialist advised me that diet would not help. But
I started to feel better and put on a bit of weight again. I
was able to go
back to class again. My aunt,
who was a nutritionist,
helped me along. Diet
definitely played a key role.
After
a couple
of months,
someone told me I could broaden
my diet. It was true, that I could probably eat a bigger variety than
I was currently eating, though
I was hesitant to try. But
after a bit of coaxing, I was
convinced. I went to their place, where they had a number of things
they wanted me to try. A word of advice to anyone with Crohn’s, or
something similar: never
try introducing multiple things at the same time. If you are going to
try something new, try some of it (not too much) and see how you feel
over the course of the next day or two. I learned this the hard way.
I believe it was chocolate that did me in (which also happens
to be my favourite – and which I still cannot eat). By the end of the
day I felt absolutely terrible. My insides churned and moaned
painfully. When I finally made it home and got it out of my system, I
thought that would be the end of it. I just had to be wary of
chocolate from here on out.
It was nearing the end of the term at school and I still had a couple of final projects to do. I spent the next three days in my room working relentlessly. But over those three days, I gradually became more and more sick. This wasn’t the regular Crohn’s kind of sickness, either. No flare up was ever like this. I had a worsening fever, coupled with headaches. By the end of the third day, there were even more alarming symptoms. Although it was more difficult than it should have been, I finished all of my final projects and was thankful. I turned my focus to my health and scoured the internet for what could possibly be happening to me. I came to the conclusion that what I had ingested punched a hole through my intestine, and was now causing an infection. The solution was surgery. It was worrying, but I made the trip to the emergency room at the hospital.
I knew things would suck
after surgery, but I also knew it was something I had to get through.
I hadn’t come this far just to come this far. I thought there would
probably be some pain, and a small amount of recovery time before
everything was back to normal and I never made this stupid mistake
again. Nothing could have been further from the truth; and it
devastated me. The next month was excruciating. And it seemed
like it would never end.
I wasn’t given anything to
help with the pain. No painkillers; nothing. On top of that, a
visiting nurse poked around my wound every day for the next few weeks
to ensure that there was no infection. Moving around was difficult
and painful. Sitting up was the same. I was essentially bedridden for
that first month, which is Hell in itself.
There was a certain point
during all of this that I think I will always remember. One day,
getting dressed, I found myself feeling particularly cheerful. Since
I had not felt happy in some time, it came as a bit of a shock. My
immediate reaction was to stop this, to get rid of this feeling. I
felt I didn’t deserve it because this was not over yet. But then I
had a thought. Why should I ever stop myself from feeling happy? If I
were to apply that mindset to life, I would be forever miserable.
Life always involves suffering, and if I only allow myself to be
happy when the suffering is over, when am I ever happy? At the end of
my life? Would I even be able to feel it then? It makes no sense. I
could sit around wishing for the day of liberation from this pain, or
I could actively make today better than yesterday. This phrase became
my maxim: You can wish away forever, but you’ll never find a day
like today.
As soon as I could walk, I
was outside. I walked every day until I could run. And then every day
I ran. It was a new freedom, and I owed it to myself. My health
improved. I had a better grasp on my diet. I was finally in control
of the situation, and this is critical for anyone with Crohn’s. If
you are not on top of things, you will easily be overwhelmed. It is
extremely easy to fall into poor health, and a lot of work to stay in
control.
After this whole ordeal, my
specialist hit me with an ultimatum. Either I took whatever drugs he
was selling, or he couldn’t help me. He then got angry with me for
asking for information on the drugs. I did a good amount of research
before coming to the conclusion that these were not necessary for me.
Not only did they increase my chances of cancer by a lot,
but I would have to go to a facility to get them
injected through an IV every
week for a month or two,
and then every two weeks for the rest of my life. I refuse to live
like that. And this isn’t even to mention that approximately half of
the people that were vocal online about their experience with these
drugs got much worse
as a result of taking them. It seemed like such an extreme solution
for something I finally had a grasp on. I’ve never been back to that
specialist since, and though I’ve had my ups and downs, I’ve never
regretted my choice.
Every
day life can make you bitter or better, so they say. Choose the
better gamble. Every single day is a choice. Life is difficult, and
sometimes it can seem like there’s no way out of your situation. But
it’s always worth it to try again. It’s always worth it to start
over. Always. You can wish away forever, but you’ll never find a day
like today.